Cleft Lip and Palate

As you can see on the picture, I was born with a bilateral cleft lip and palate (German: beidseitige Lippen-, Kiefer-, und Gaumenspalte). It is the second most common birth defect and does not cause me any pain as such. However, it will require a few surgeries on the lip, the palate, and the alveolar ridge for cosmetic purposes and to improve eating and speech.

These surgeries will be performed until I am grown up, but those procedures and additional speech therapy should do me well. At this point, I had two major surgeries to close my lip and my palate and two minor surgeries for ear tubes. If things go well, I won’t have any further surgeries until I am 9 years old.

If you want to learn more about this birth defect, you can follow the links below.

Information in English

  • Cleft lip an palate in a nutshell (from a plastic surgery site).
  • Widesmiles: probably the worlds largest cleft ressource on the web with lots of information and a very active user group named cleft talk.
  • Smiles: another site with lots of useful information.
  • Cleftline: Homepage of the Cleft Palate Foundation
  • Cleftinfo: a page with many links.
  • ICPF: The International Cleft Lip and Palate Foundation (website still under construction). 

Informationen in Deutsch

  • Uebersicht I (von Medicine worldwide).
  • Uebersicht II  (Behandlungszentrum MHH Hannover).
  • Selbsthilfevereinigung fuer Lippen-Gaumenfehlbildungen e.V.
  • LKG Sp@lte Berlin: elbsthilfegruppe in Berlin
  • Infoseite der Deutsche Gesellschaft für Phoniatrie und Pädaudiologie e.V.
  • SGLKG: Schweizer Gesellschaft fuer Lippen-Kiefer-Gaumenspalten.
  • VES: Vereinigung von Eltern mit Spaltkindern (Schweiz).
  • Einige Behandlungszentren in Deutschland:

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